Shannon Bowen
Founder CEO @Rare Impact Agency
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WORK HISTORY
Founder CEO @Rare Impact Agency
Rare Impact Agency provides expert fundraising and communications support to help rare disease foundations accelerate progress toward treatments and cures. Our work is powered by compassion, guided by science, and grounded in a deep love for the rare community.Through monthly retainers, project-based work, end-of-year campaigns, and event support, we bring senior-level strategy, authentic storytelling, and trusted partnership to every aspect of your fundraising. Our services make your work easier, your message clearer, and your impact stronger—helping you raise the resources that move research, care, and hope forward.Rare Impact Agency exists to bring ease, strategy, and joy to your fundraising. We know how deeply you care about your families, your researchers, and the future you’re building. Our expert team brings that same heart to every strategy, story, and campaign we create. Together, we ignite the generosity that moves rare disease research and hope forward.
EDUCATION
Trinity University
Bachelor of Arts, Psychology
SKILLS
ABOUT SHANNON BOWEN
I’m Shannon Bowen — founder of Monsoon Leadership and Rare Impact Agency, two ventures united by one passion: helping people and organizations grow into their full brilliance.At Monsoon Leadership, I coach professionals to make bold career moves that feel aligned, energizing, and built to last. Whether you’re job searching, stepping into leadership, or negotiating your next big salary bump—I’m your coach, strategist, and hype woman rolled into one.My coaching blends real talk, deep strategy, and personalized reports to help you land the job and build the life you’ve been craving. From uncovering the work that truly lights you up, to telling your story with clarity across your resume, LinkedIn, and interviews—I’m with you every step of the way.And through Rare Impact Agency, I bring that same clarity and drive to the rare disease space helping foundations fund cures through smart strategy and heartfelt storytelling. With 20 years of experience in fundraising and communications + a deep understanding of scientific philanthropy, I lead a boutique team that takes the burden off foundation leaders so they can focus on accelerating genetic research and supporting diagnosed families.What I bring- Career + leadership coaching that fuels your purpose- Fundraising strategy that grows revenue and impact- Two decades of experience leading advancement teams and securing multimillion-dollar gifts- A rare mix of creativity, science-savvy storytelling, and deep empathy for the humans behind every missionWhen I’m not coaching or strategizing, you’ll find me gardening for the next season, designing my house, cooking gourmet meals, loving my fluffy dog, or planning my next dreamy getaway. Whether you’re a professional seeking career clarity or a rare disease foundation ready to grow—let’s connect. Together, we’ll build something powerful, purposeful, and lasting.
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