Rachel Worden

Founder & Publisher | Inclusive Children’s Books | CVI-Informed Publishing | Special Needs & Disability Advocate | Board Member, KAT6 Foundation

Role: Kat6 Foundation Board Member at Kat6 Foundation
Location: Austin, TX, US
LinkedIn followers: 500 followers

General Business & ManagementView LinkedIn profile

About Rachel Worden

I am the Founder & Publisher of Little Dandelion Press, an independent children’s book…

Experience

Kat6 Foundation Board Member
Kat6 Foundation
Feb 2025 — Present
Serve on the board of the KAT6 Foundation, a nonprofit organization dedicated to supporting families, raising awareness, advancing medical research, and advocating for individuals living with KAT6-related genetic disorders.• Collaborate on advocacy, fundraising, and strategic outreach• Support family education, resources, and medical partnerships• Advance research initiatives and public awareness of rare genetic conditions

Education

College of Charleston
Arts / Spanish
New York Conservatory for Dramatic Arts
Film and Television Performance

Contact information

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•••••@kat6.org
Personal email
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Current company

Kat6 Foundation

Non-Profit Organizations · 9 employees · Founded 2017 · Chevy Chase, Maryland, United States

The KAT6 Foundation was founded in 2017 by a handful of parents of children identified with variants on their KAT6A gene. At the time, there were less than 50 known KAT6A cases. In 2020, the KAT6A Foundation began fostering connections with the KAT6B community and in 2022, we formally became the KAT6 Foundation, an organization devoted to understanding mutations in both KAT6A and KAT6B genes. Today, there are more than 700 known cases of KAT6 syndromes worldwide, and we expect our numbers to continue to grow. OUR MISSION: The KAT6 Foundation supports individuals and their families who are living with KAT6A and KAT6B syndromes around the world. We advance scientific research aimed at developing treatments to spread awareness of KAT6 syndromes so they can be more easily identified, treated, and studied. We hope that you will reach out to us if your family member was diagnosed with KAT6A or KAT6B. You can join our support group at We empathize with your daily struggles associated with this rare disease and are here to support, educate and learn from you. We are the only 501(c)(3) nonprofit organization founded to support the international KAT6A and KAT6B syndrome community. Please consider making a tax-deductible donation at kat6.org.

kat6.org

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About Rachel Worden

Experience

Kat6 Foundation Board Member

Education

College of Charleston

New York Conservatory for Dramatic Arts

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