Joana E. Matos
Independent Consultant | Real-World Evidence (RWE) & Health Economics & Outcomes Research (HEOR) | Rare Disease & Gene Therapy Expertise
- Role
- Medical Advisory Board Member - Patient Registry Advisor at Parry Romberg Foundation
- Location
- Rockville, MD, US
- LinkedIn followers
- 500 followers
About Joana E. Matos
Independent RWE & HEOR consultant with a strong scientific foundation and experience in real-world data strategy, study design, and evidence generation. I specialize in leveraging Real-World Evidence to support regulatory submissions, market access, and patient-centered outcomes, with a particular passion for rare diseases and advanced therapies.Adaptable and collaborative, I’ve successfully partnered with multicultural, cross-functional global teams to deliver innovative solutions across multiple therapeutic areas. My experience spans proposal development, peer-reviewed publications, study management, and cross-stakeholder communication, bridging science and strategy for both academic and industry audiences.As a freelancer, I bring creativity, reliability, and a deep commitment to patient impact. I’m especially driven by rare disease advocacy and value opportunities to support biotech and pharma organizations in bringing transformative therapies to patients.
Experience
Medical Advisory Board Member - Patient Registry Advisor
Jun 2023 — Present
Education
University of Lisbon
Licenciatura , Microbiology and Genetics
Penn State University
Certificate in Applied Statistics, Applied Statistics
Aarhus University
PhD in Medicine, Physiology
Skills
- Team-Oriented
- Market Research
- Communication Skills
- Molecular Biology
- Data Analysis
- Analytical Skills
- Microscopy
- Physiology
- Life Sciences
- Molecular & Cellular Biology
- Statistics
- Scientific Literature Analysis
- Supervisory Experience
- Scientific Writing
- Pharmacology
- Cell Culture
- Science
- Biochemistry
- Genetics
- Neuroscience
- Cell Biology
- Biology
- Health Sciences
- Research
- Biotechnology
- Biostatistics
- Epidemiology
- Protein Expression
- Electrophysiology
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