Kay-Diene Robinson
Patient Liaison @Kamau Therapeutics
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WORK HISTORY
Patient Liaison @Kamau Therapeutics
Act as an independent advocate for patients, ensuring their voices, needs, and perspectives are respected throughout the study• Promotes patient empowerment and trust by maintaining transparency and providing consistent, reliable support• Clearly explain the purpose, procedures, and requirements of the Restore Clinical Trial in accessible, patient-friendly language.• • Facilitate and reinforce the informed consent process, ensuring participants fully understand their rights, responsibilities, and the study’s potential risks and benefits• Translate complex medical, scientific, and trial-related data into terms that patients and caregivers can understand can easily understand, focusing on Sickle Cell Disease and the Restore Clinical Trial Protocol.Navigation & Logistics:• • Guide participants through every clinical trial stage, including screening, treatment, assessments, and follow-up visits• • Assist with practical logistics such as scheduling, transportation, and accommodations as needed, reducing barriers to participation• • Support participants in adhering to study protocols and treatment regimens, encouraging problem-solving when challenges arise.
EDUCATION
Liberty University
Master of Public Health - MPH, Public Health Education and Promotion
University of Central Florida
Bacelor's , Multi-/Interdisciplinary Studies, General B.S.
Nova Southeastern University
Doctor of Health Science , Health care Clinician
Liberty University
Graduate Certificate , Global Health
ABOUT KAY-DIENE ROBINSON
Kay-Diene Robinson, MPH, CHW, is a seasoned rare disease professional, a former sickle cell hemoglobin-SS patient, and a Diversity and inclusion expert. Her journey as a patient advocacy leader began in 2013 and has been marked by highly successful collaborations with thought leaders, healthcare professionals, policymakers, and pharmaceutical collaborations. While living in New Jersey, she began working with the Sickle Cell Association of New Jersey as a Peer Leader, and her advocacy efforts earned her the Advocate of the Year Award in November 2013. In August 2018, she completed the Community Health Worker training with the Sickle Cell Association of America (SCDAA)and participated in webinars and educational symposiums with the SCDAA and hospital systems. In May and December 2018, she graduated with her Master of Public Health degree and Global Health Grad Certificate. She is pursuing her Doctor of Health Science degree at Nova Southeastern University, which she will complete in 2025. In her journey through life, she has passionately embedded the famous quote by Gandhi: Be the change you wish to see in the world, and she aims for all rare disease patients, especially sickle cell patients, to receive that change.
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