Julie Flygare

About Julie Flygare

I found Julie’s talk to be spectacular.” –Dr. Ron Harper, UCLA Medical School ProfessorJulie Flygare, JD is the founder of Project Sleep, a non-profit raising awareness about sleep health and sleep disorders. Julie is a leading narcolepsy spokesperson and award-winning author, diagnosed with narcolepsy with cataplexy in 2007. She received her B.A. from Brown University in 2005 & her J.D. from Boston College Law School in 2009. In 2013, “Wide Awake and Dreaming” won the First Prize Biography/Autobiography Award at the San Francisco Book Festival. Upon recognizing that many doctors were unfamiliar with narcolepsy, Julie collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students.She is the creator of the SLEEP WALK event series and the NARCOLEPSY: NOT ALONE international campaign. Her story has been featured by Marie Claire, Psychology Today, ABC, NBC, Discovery Channel & Huff Post.PAST SPEAKING ENGAGEMENTS:• Harvard Medical School, The Neurobiology of Disease Course (2008, 2012)• Seminars in Brain and Behavior, Boston area neuroscientists (2008)• Narcolepsy Network Conference (2009, 2010, 2011, 2012, 2013)• Southern Sleep Society Conference (2012, 2013)• Nurses & Pharmacists Training, Express Scripts (2012)• Narcolepsy Care Line Training, Patient Advocate Foundation (2012)• InnovationPharm Rare Disease Roundtable (2012)• Caring Voice Coalition’s Weekend Wellness Retreat (2012)• Social Media for Pharma Conference 2013)• APSS SLEEP Meeting (2013)• BRPT Symposium (2013)• Kentucky Sleep Society Conference (2013)• Florida International University Med School & Keynote Diversity Day (2013)• CROWN Summit Conference (2014)• UCLA Medical School (2014)• USC Neuroscience Interaxon (2014)• Stanford Medicine X (2015)

Experience

1. President & CEO

   Project Sleep

   Feb 2018 — Present · Los Angeles, CA, US

   As the leader of the organization, the President & CEO provides strategic direction in advancing Project Sleep’s vision, mission, strategic goals, fundraising activities and objectives.

Education

• Brown University

  B.A., History of Art and Architecture

  2001 — 2005

• Boston College Law School

  J.D., Art Law and Health Law

  2006 — 2009

Skills

• Social Networking
• Community Outreach
• Community Development
• Event Planning
• Public Speaking
• Media Relations
• Research
• Blogging
• Nonprofits
• Social Media
• Editing
• Program Development
• Policy
• Grant Writing
• Non-Profits
• Newsletters
• Proposal Writing
• Strategic Communications
• Patient Advocacy
• Volunteer Management
• Public Health
• Healthcare
• Fundraising
• Writing
• Public Policy