Brooke Friedman
New York State Ambassador @National Organization for Rare Disorders
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WORK HISTORY
New York State Ambassador @National Organization for Rare Disorders
New York, NY, US
Work closely with the Rare Action Network and Rare Disease Action Coalition for the State of New York. Ensure consistent messaging and calls to action, and advise on training and educational initiatives for members and key officials.Published four rare diseases reports on NORD\'s database:• CHCHD10-Related Disorders (2025)• High Myopia-Sensorineural Deafness Syndrome (2025)• Nemaline Myopathy (2024)• Ellis-Van Creveld Syndrome (2024)
EDUCATION
Valencia High School
High School Diploma
University of Notre Dame
Bachelor of Arts - BA
Icahn School of Medicine at Mount Sinai
Doctor of Philosophy - PhD
ABOUT BROOKE FRIEDMAN
Notre Dame alumna and Mount Sinai Ph.D. candidate studying RNA splicing dysfunction in…
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