William Robie
Experienced Public Policy Advocate and Trade Association Leader
- Role
- Senior Director, State Government Relations at National Bleeding Disorders Foundation
- Location
- Bend, US
- LinkedIn followers
- 500 followers
About William Robie
With a focus on customer service, strong political awareness, excellent analytical…
Experience
Senior Director, State Government Relations
National Bleeding Disorders Foundation
May 2015 — Present · Bend, OR, US
As a government relations liaison to state chapters of the National Bleeding Disorders Foundation from Wisconsin to Hawaii I\'m fortunate to be helping people with hemophilia and related bleeding disorders become more effective public policy advocates with their respective state governments and advance public policies that remove barriers to health care. I am directly responsible for engaging with state governments in twenty-five states mostly in the western US. In addition to addressing health care policy developments in state legislatures and regulatory agencies I help build the grassroots advocacy capacity of the bleeding disorders community in more than fifty state nonprofit chapters nationwide. Among our priority issues are payer utilization management practices, patient out-of-pocket expenses, Medicaid management of hemophilia, gene and other novel therapies, ACA and Medicaid state waivers, pharmacy standards of care, Rare Disease Advisory Councils, and Prescription Drug Affordability Boards. I work closely with other patient advocacy organizations, health care providers, policy consultants, biopharmaceutical manufacturers, and health care payers to ensure that people with bleeding disorders have timely access to high quality medical care and services, regardless of financial circumstances or place of residence.
Education
University of Alaska Fairbanks
Biological Oceanography
Boston University
B.A., Biology
Skills
- Grants
- Government Affairs
- Strategic Communications
- Legislative
- Policy
- Public Policy
- Grassroots Organization
- Policy Analysis
- Speech Writing
- Real Estate
- Public Relations
- Government Liaison
- Media Relations
- Community Outreach
- Community Development
- Legislative Relations
- Environmental Awareness
- Legislative Affairs
- Environmental Policy
- Local Government
- Research
- Community Organizing
- Environmental
- Fundraising
- Grassroots Organizing
- Political Consulting
- Event Management
- Crisis Communications
- Governmental Affairs
- Land Use
- Legislation
- Event Planning
- Government
- Nonprofits
- Public Affairs
- Land Use Planning
- Public Speaking
- Government Relations
- Pac
- Association Management
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