Amy Mann
Expert Patient Advisor on HCM and the Heart Transplant Process | UK-Trained Midwife. My views are my own and do not reflect any organization I work with or have worked with
- Role
- Expert Patient Advisor at Cytokinetics
- Location
- Hartford, CT, US
- LinkedIn followers
- 500 followers
About Amy Mann
As a Consultant, I leverage my dual expertise as a Certified Midwife and a Patient Expert in Hypertrophic Cardiomyopathy (HCM), Cardiac Transplant, and Heart Failure. I have over 15 years of experience in clinical healthcare, patient education, and research evaluation, working for and volunteering for cardiac nonprofits in the U.S. and the U.K.My passion for improving healthcare stems from my personal journey with HCM, which led to a surgical myectomy, an implantable defibrillator, and a cardiac transplant in 2018. I use my unique perspective and insights to advocate for others with HCM and those going through the heart transplant process. I also collaborate with HCM medical teams and experts to coordinate innovative projects and initiatives that enhance patient outcomes and quality of life.
Experience
Expert Patient Advisor
Feb 2025 — Present · US
Advise departments and employees on living with HCM and oHCM, sharing personal experiences and insights.• Presented at meetings and events both in person and remotely to educate and inform about treatments and challenges.• Collaborated with teams to provide firsthand accounts of living with HCM and oHCM, and having a child with the condition, including treatments we’ve endured.
Education
University of Bedfordshire
Bachelor of Science - BS, Direct Entry Midwifery
2004 — 2007
University of California, Berkeley
Extention Certificate, Healthcare Advocacy
Simmons University
Communication and Media Studies
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