Lauren Isbell

Executive Director @Nevus Outreach, Inc

Jonesboro, AR, US

Research and Collaboration: Collaborates with external stakeholders for the purpose of clinical research. For example, defined patient centered outcomes of the MyPART study in partnership with the National Institute of Health, contributing to the advancement of research in the field. Presently working with additional external stakeholders to advance an IRB-approved patient registry and other clinical trials and bench research.Community Engagement: Cultivate a community of over households, representing over 700 official members of Nevus Outreach in 36 countries and six continents to meet the mission of Nevus Outreach. Foster connections within the community and oversee the execution of an every-two years international conference and reunion.Fundraising and Philanthropy: Responsible for fundraising and growth of the organiztion, improving donor stewardship processes and most recently played a pivotal role in the development of the See Beyond Collateral, showcasing expertise in philanthropy and community support.Advocacy and External Board Service: Participate in several Rare-Disease and Dermatology specific Hill Days as organized by external parterns like the AAD and the Coaltion of Skin Diseases. Presently serve as a member of the PeDRA PtAC and as Secretary of the Board for the CSD.Strategic Planning: In partnership with the Board of Directors, works to execute the current strategic plan, monitoring its success and advocating for long-term success and vision of the organization as it relates to day-to-day operations.Financial Oversight and Governance: Supervise timely and accurate financial reporting and reconciliations, demonstrating proficiency in financial management and governance participation.Leadership and Vision: Cast a clear path for scaled growth, and demonstrates a commitment to organizational success through aspirational goals, showcasing strong leadership and a forward-thinking vision for Nevus Outreach.

University of Central Arkansas

Community Development

Kellogg Executive Education

Executive Education, Non Profit Management

Arkansas State University

Bachelor’s of Social Work (BSW), Social Work

University of Maryland, Baltimore (UMB)

PATIENTS Professors Academy, Patient Engagement